On Sunday, Sept. 27 from 1 to 2 p.m. Karen Beal and Katherine Haynes will be hosting “Food for Thought” an event to raise awareness of Frontotemporal Degeneration (FTD) in the Whale Park on Commercial Street in Boothbay Harbor. Social distancing will be observed and masks are required.
This is a progressive neurodegenerative disease affecting 50,000 people in the US, and the leading cause of dementia for adults under 60. Through events such as this Beal and Haynes seek to improve care and find a cure for FTD. They will be sharing information about the disease and an amazing organization available for individuals and families of those impacted.
FTD brings a gradual, progressive decline in behavior, language or movement, with memory usually relatively preserved. It is different than Alzheimer’s disease and is often misdiagnosed. It takes an individual on average close to four years to find a proper diagnosis. The disease strikes people in the prime of their life, stealing away their personality, their ability to speak, move and behave within social norms.
Through the Food for Thought campaign, the Association for Frontotemporal Degeneration (AFTD) is mobilizing grassroots supporters across the country to hold events involving food and FTD education.
“We are a family impacted as my dear father was diagnosed three years ago after numerous visits to doctors over the 3-4 years prior,” said Haynes. “My dad loves food and Boothbay Harbor! We thought it only fitting to share our story and help others learn more about the disease and help available.
“Please grab a coffee or drink at the Red Cup and we will have baked goods and information,” added Haynes.